It is with heavy hearts and deep sorrow that we announce the passing of Hannah Smith, a remarkable young woman from Clinton, Michigan, who left this world peacefully in her sleep on July 4, 2025. Hannah was 19 years old and had been bravely battling SCA7, a rare genetic disease that progressively robbed her of her sight and speech. Despite the immense challenges she faced, including the loss of two of her most basic senses, Hannah remained an inspiring figure of strength, resilience, and courage.
From a young age, it was clear that Hannah was a fighter. SCA7, or Spinocerebellar Ataxia Type 7, is a degenerative condition that impacts motor coordination and causes progressive vision and speech loss. As her body struggled with the effects of the disease, Hannah continued to push forward, never allowing the difficulties she encountered to define her. Her parents, friends, and community saw firsthand her unyielding determination to not just survive but thrive.
One of the most remarkable accomplishments of Hannah’s life was her ability to graduate from high school, despite the overwhelming odds stacked against her. It was a monumental achievement that demonstrated her drive, her will to succeed, and her commitment to her education. She did not allow the effects of SCA7 to stop her from pursuing her dreams and achieving her goals. During her final years of high school, she also learned braille, a skill that empowered her to maintain some independence and continue reading and writing.
Hannah’s journey was one filled with immense personal sacrifices, but she faced each day with grace and optimism. The loss of her vision and speech was heartbreaking for her and her loved ones, but even as her abilities diminished, her spirit remained unwavering. She maintained an incredible sense of humor, a warm heart, and a unique way of making others feel loved and appreciated. Those who had the privilege of knowing her saw firsthand how she could light up a room with her smile and her presence, even without words.
Her mother, Toni, who has been her devoted caregiver throughout this long battle, is struggling with an unimaginable sense of loss. Toni’s commitment to Hannah was nothing short of extraordinary. For years, she dedicated herself to her daughter’s care, ensuring that Hannah had the support she needed to live her life as fully as possible. Together, mother and daughter formed a bond that was unbreakable, built on love, trust, and shared strength. Toni’s devotion to Hannah was a reflection of the deep love and pride she felt for her daughter, who never gave up, even when faced with the hardest of challenges.
Hannah’s passing has left a deep void in the hearts of her family, friends, and community. She was a source of inspiration to many, a symbol of strength and perseverance, and a reminder of the power of the human spirit. While her time on this earth was far too short, her impact was immeasurable. Hannah’s family, particularly her mother, will carry forward her memory, honoring the legacy of love, resilience, and hope that she leaves behind.
In light of Hannah’s passing, a fundraiser has been established to help honor her memory and provide support for her grieving family. The funds raised will assist in covering funeral expenses and offer some financial relief to her family as they navigate this painful time. In addition, the family hopes that the fundraiser will provide an opportunity for those who knew and loved Hannah to come together and celebrate her life, share their memories, and offer support in the days ahead.
Hannah’s legacy is one of courage, determination, and a love for life that remained intact even in the face of adversity. Her story will live on in the hearts of all those who were touched by her, and she will always be remembered for the strength she demonstrated, the kindness she gave, and the beauty she brought into the world. Despite the limitations imposed by her illness, Hannah never lost her ability to inspire those around her. Her strength and courage continue to inspire others to persevere through their own challenges, reminding us all that we are capable of more than we often realize.
Hannah’s passing has left an ache in the hearts of her family and community, but her memory will continue to live on. The impact she had on those who knew her is immeasurable, and her legacy will continue to inspire others to live with the same grace, courage, and love that she demonstrated throughout her life. Her story will remain a beacon of hope, reminding us all to cherish the moments we have and to always find the strength to keep moving forward, even in the face of difficulty.
Rest in peace, Hannah. Your courage, your strength, and your unwavering spirit will never be forgotten. You may have lost your battle with SCA7, but you won in the hearts of everyone who knew you. You will forever be loved, and your light will continue to shine in the hearts of those who were lucky enough to have you in their lives.
